Holland 2010
Rhizokids Meeting 2010 in Holland
We arrived on Friday, the 30.07. against 14.30 Clock in Haarzuilens in meadow and Pedro, and received incredibly friendly. Before we unpacked our bags, we were already deep in conversation, which was conducted through meadows mostly in German. And then if we are neither English nor German hands and feet were helped further used, what would an outsider certainly looked very funny. And already we have been surprised, that we could only marvel still stunned. As a meadow bent over Lisa, which was not really happy in her stroller, she asked me, Lisa if she would sometimes take the mickey. Never before had anyone asked so natural and we said "yes". And then something amazing happened! Every movement was our original, Lisa, she turned as we, Lisa held her as we and they spoke to her as we. We could say another word out of sheer amazement, But it got even better. And although of course if and when Lisa got hungry and wanted to feed them Wies. And even then: every movement was like our own and Lisa broke her little pout, and could not get enough ... she was just happy and contented in Wies poor.
And then I heard Lisa's dad suddenly as he said: "Da ist Eline!"And I turned around and could hardly breathe ... because our Lisa was only with long hair, a naughty pigtail and glasses in the buggy! "Things like this are not yet!"Was my first thought and the next moment shone that little bit all over his face and everything melted in us like hot butter. Unbelievable, she is so sweet! And also allowed us to meadow and Pedro, that we could take Eline on the arm and then we realized it myself ... it was just all the same and it felt all the same to. And she shone with the sun to the bet and had with that smile can melt even stones.
As always, Lisa took the afternoon run their course, but even this was as natural as feeding and immediately gave me had a Mikrolax and Pampers and we could feel at home. Nowhere were curious looks, nowhere questions, nothing that shows us that we are different, because we were no different. In great feeling! And as Lisa and Eline then lay together in bed box, could both looked like siblings, and if you do not does not look different from one who made just two noise, because the two sounded the same even. Simply unbelievable. And as we lay in bed all night, we were just still excited about all the other children and their parents and suspected, that we would see even more surprises.
Saturday morning, as Pedro and Frank went shopping and meadow, and I prepared the salads,I met the first Eline Grandma. A great and very warm-hearted woman, The English also means us very welcomed. She was noticed immediately, that she loved Eline and Lisa joined immediately in her heart.
One 11 Clock time had come and wobbled the first families and we were not out of the wonder. Even if all the children, we saw times larger and times were smaller, sometimes with dark and sometimes entirely without hair, yet they were unmistakably Rhizokids. Madness! All parents welcomed us warmly and sought possible with English or even German to give us as much information as somehow. And again we were anything special ... almost every child had a PEG and the chirped probe machines to race, each child was wrapped in the middle of all,probed, fed or just bespaßt. And we have never felt more normal than under all the angels with their special parents.
But technically, we received so much help, as we had hoped for never. We were given tips on diet and learned, RCDP that children should get no cow's milk because of the phytanic acid (we have never heard!), We heard that a family of her daughter every day a little bit and have found other antibiotics are homeopathic remedy for the bad ear infections. Also on heart issues ("When Lisa finally allowed to shower with their fresh PEG?“) we got instant answers („Sofort!“).
In the afternoon, was joined by Dr. The poll to us and we learned, that it is the luminary in the field of RCDP. This chance we had of course not wasted and made it the most important issues for us. First, why Lisa has maintained its OP always closed his eyes and in response we got,that was an anesthesia error. Uff! But there was still huge, because we told her about Lisa's epilepsy. We told her, Lisa looks like the attacks that would by Eline and we still have not found a suitable anti-epileptic, so we probably would have to fall back soon to cortisone. She put one or two questions and then said:"This is not epilepsy. Stop the medication after consulting your doctor. And he should not believe you, he should call me and I give him all necessary information. "No Epi? 5 Years drug free? 5 dispensed with years of fun and action, order not to provoke the attacks? Can this really be true??? We will finden.Schon out very soon.
When we were alone at night, we were very tired and had a thousand thoughts and beautiful images in my head:
Von Eline, sitting in her chair laughing or wondering.
Von Floor, the louder the music was always cheerful and was clapped her little hands.
Von Gijs, Bigboy of his 27.8 kilograms of just about every nice word is so very happy.
Von Koen, the boy with the piercing blue eyes, the wrap with a look every girl around her little finger can.
By Anna, RCDP currently the youngest girl in Holland, with their 6,5 Months, one of the sweetest babies in the world and their PEG-OP survive on Thursday hopefully good will.
And the sweet flea Thijmen in Maxi-Cosi, small, with its saucer eyes looked at the goings.
It was just great and we look forward to a reunion with all the sweet angels and their special parents.
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